Published on June 25, 2014
LIBERTY IN ACTION 2 Kristina is just one of millions of Ameri- cans whose lives hang in the balance of the Federal Drug and Administration’s lengthy approval process, which takes an average of ten years. Consider Jenn McNary’s two sons, Austin and Max. Both boys suer from Duchenne’s mus - cular dystrophy, a rare terminal disease that’s ravaging their bodies. First, Duch- enne’s eats away at the muscles, conning children to wheelchairs. Paralysis comes soon after. Ultimately, boys with Duch- enne’s lose the ability to eat, swallow and breathe. Most will die before reaching their 20th birthday. When the boys were diagnosed, Jenn vis- ited doctor after doctor, and pored over the medical research to nd anything that could help. And she did nd something. Max, now 12, was accepted into a promis- ing clinical trial last year – today, he plays soccer. But the FDA denied Austin entry into the same clinical trial because, unlike Max, Austin was already too sick, accord- ing to trial administrators. As you may know from personal experi- ence, these families are not alone. It takes over a decade and a billion dollars for new medicines to complete the FDA’s archaic approval process. In the mean- time, 40 percent of cancer patients apply for clinical trials, and only 3 percent make it in. America can do better. The Goldwater Institute’s Right To Try initiative would give terminal patients the right to try medicines, giving them the opportunity to continue ghting for their lives when the FDA has left them without any other options. It’s about insuring that those who are most in need aren’t having to battle red tape. Right To Try already passed in Colorado and Louisiana, awaits the governor’s sig- nature in Missouri, and Arizona voters will vote for Right To Try on their fall ballot. We are sharing Right To Try with legisla- tors and citizens nationwide. If you’d like to help in your state, please contact Victor Riches at (602) 712-1257. Every American should have the freedom to try to save his own life. Please share your ideas and experiences with us as we move forward. Thank you for generously supporting the Institute and making this life-saving initiative pos- sible. Thank you, A MESSAGE FROM DARCY OLSEN, PRESIDENT Missouri state representative Jim Neely isn’t just a legislator, he’s also a dad. For the past year, Dr. Neely has watched his daughter, Kristina, grow sicker and sicker in her fght against colon cancer. She may lose her battle -- not because there is no cure, but because the drug that could help her won’t be available in America or several years.