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“Encephalitis in Children - A Guide” (2nd Version, September 2014) First Published: March 2006 Review Date: September 2017 Published by: The Encephalitis Society Designed by: Finkk Limited. www.fnkk.com 2014 Copyright ISBN: 978-0-9552180-8-8 Support line 44 (0)1653 699 599 The Encephalitis Society The Encephalitis Society is an international charity and the only organisation o our kind in the world dedicated to supporting adults and children aected by Encephalitis. The Society provides support and inormation to all people aected by Encephalitis across the globe, and to a variety o proessionals and organisations rom health, social care and education. The Society works in conjunction with academic and clinical partners to promote and conduct high quality research into Encephalitis and its consequences, and promote high standards or patient diagnosis, management and care. e are etreel grateful to The Eden Dora Trust for funding that enabled the design and print of this Guide. About this Guide This Guide is a comprehensive inormation resource aiming to improve the quality o lie o children aected by Encephalitis and their amilies. It ollows the child and their amily’s journey rom the hospital ward, to the rehabilitation setting, school and home, hoping to direct them through the maze o health care, education and social services. A recent survey to parents highlighted the importance o having the right inormation at the right time. Children and amilies need to understand what has happened to them, what they can do to maximise their recovery and what to expect rom the uture. This Guide not only provides medical acts about Encephalitis and Acquired Brain Injury that can ollow, but can also give practical tips or all amily members to enable them to appropriately look ater themselves and the child aected. The inormation provided in this Guide is designed to support, not replace, the relationship that exists between a patient and medical proessionals. Should any o the inormation raise issues or give you reason or concern we would ask that you contact the ofce via our support line 44 (0)1653 699599 or alternatively we can be contacted by email on support@encephalitis.info Geographical limitations The Guide is aimed at all amilies o children aected by Encephalitis irrespective o where you live. But certain inormation in the book such as details o organisations and legislation apply only to the UK or some parts o the UK. I you live outside these areas you are encouraged to fnd similar organisations to those reerenced and consult the legislation which is applicable to the area you live in. Find us online at www.encephalitis.info
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